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Kylie’s story

Kylie with dogLung Cancer Network Australia (formerly Kylie Johnston Lung Cancer Network) was inspired by Kylie Johnston – a young, fit 27 year old woman, who was diagnosed with advanced non small cell lung cancer in May 2003.

Throughout the 4 ½ years Kylie lived with lung cancer, she and husband Nick, devoted time, energy and passion to raising awareness around lung cancer in the general community.  Kylie worked with the Lung Foundation to identify gaps in providing lung cancer patients and their families with reliable information, support and hope.

Kylie’s journey

In May 2003, Kylie Johnston found out she had locally advanced non small cell lung cancer. Kylie was a healthy non-smoking 27 year old professional who had dreams and plans – a career, marriage, and children. “I was scared, but wanted to leave no stone unturned to fight the cancer”, Kylie said.

Months of treatment followed including radiation, chemotherapy and surgery. Access to a newly developed targeted therapy gave Kylie two and half years with stabilized disease and an excellent quality of life. Despite a recurrence of the lung cancer in 2006, Kylie had a determined outlook and continued to fight for her life with the help of her dedicated oncologist and lung cancer multidisciplinary team.

Throughout her lung cancer journey, Kylie took up patient advocacy roles. In mid 2006, Kylie and husband Nick, took part in a hot air balloon ride over the Simpson Desert to raise awareness and funding for lung cancer.

At the time, Kylie acknowledged that “lung cancer is a complex disease and you have to be two steps ahead of it”. Kylie’s hope was that new treatment advancements would one day render lung cancer a chronic disease.

Kylie passed away on 9th November 2007 after a four and a half year fight to survive lung cancer.